A year ago, we were camped out at Lake Elizabeth in Fremont, asking our friends & family to sign up for the national bone marrow registry through AADP, in hopes of finding Mailyna a match. Throughout the year, we waited & waited, and a year came & went that we started looking for a donor. Over the holidays, my heart was so heavy when that one year mark hit. I thought it just wasnt meant to be & I silently carried that burden on my own. Then I found out there was a potential donor & we were asked to go in for a consultation to talk about it. Then there was more waiting... for the rough flu season to end, then for the donor to agree. In 3 days, THREE DAYS, Mailyna will receive the ultimate gift from someone we may never know.
She has been in the hospital for a little over a week now & is feeling the effects of not only the chemo, but the isolation. Its a tough thing, to be away from your family & friends, in a room that you cant leave, staring out the window & longing to feel the sunshine or wind in your face, or wishing you could hug your crazy little sister. The things we often take for granted.
We are so lucky to live in the age of technology. Being able to share our story with our friends and family, give them instant update on Facebook, or facetiming/Google Hangouts... its a blessing. It's an age that allows people to stay connected. 2 family parties over the weekend & it was eating away at Mailyna that she was stuck in the hospital. She was able to be there to chat with everyone AND during the birthday cake... Thanks Steve Jobs!!
But really, today marks a special day for us & reminds me how blessed we are. From our enormous support system, to our team of medical staff, to the kindness of our friends & family, and their friends and family... we are BLESSED!!
aadp.org/donate
facebook.com/amatchformailyna
http://www.gofundme.com/amatchformailyna
#amatchformailyna
No comments:
Post a Comment