Generally, her transfusions would take all day. From 9am until about 4, we were there. To minimize the time there, we take her in for blood draws up to 48 hours earlier, which is a peripheral stick in her arm, that isn't numbed with anything. You can imagine how THAT goes! But it cuts our time there down to about 5 hours instead. Its a long day, but absolutely necessary. The preventative & proactive measures we take keep Mailyna her healthy self.
Its an absolute blessing that we are in an area of the world that has such amazing care. Many countries that are known for Beta Thal don't have the same advantages. I just pray that the advancements in healthcare continue to grow & thrive, so that my little monkey will stay as healthy as a hippo!